Here is a little "fun", me just blowing off steam after a hair raising week JS

This is just annoying

Every day is a cliff hanger
Chemo was scheduled for fri April 29, but then we see that Great Aunt Joannes big b-day bash is set for that Fri and Sat.
We decided that if I could take chemo Monday then maybe I could go
No. I couldnt get on the schedule for Monday nor Tuesday.
So it ends up that I am scheduled for Thursday, just before the B day. Oh well.
The bright side- that was good because I was well for Martha's bday on Weds, April 27 So I show up for chemo on Thurs. but my blood is still too weak after two weeks off.
So now I schedule for Monday
Change. The bright side- I am now available to go to the birthday bash in los Osos But oh no! If i wait for monday i will be sick travelling to NYC for my mom's inurnment in Brooklyn on May 7.
Stop. I try to get an appointment on fri Apr 29 before the weekend one last chance.
That night, I shoot up with platelet builder at home- i have flu symptoms from the platelet growth factor
I go in on friday my platelets are not up enough
Well, now I am definantly going to the birthday bash
I do and it is a wonderful time
But every day I am shooting up with the growth factor which makes me Ill.
(Thanks to Martha and Johanna who make a 5hr RT trip to get the forgotten injections. Bright side- they had quality time on the car ride.)
But I have to if I want to keep my chemo schedule before i go to NYC
I am ready for chemo on Monday, but dragging from the growth factor.
I do my 6 1/2 hour infusion. Gemzar and Oxcilipltin. I feel the effects now before I am out the door.On my way home.
Downstairs in the pharmacy the doctor has prescribed a third element to my tumor fight. I stop to pick it up.
It is Taceva a new drug to retard epidural growth of the tumor- in theory it stops the growth of the outer edge of the tumor- $500 co-pay! Whoops
Well I'll pick it up today and figure out $ later.
Home- dragging like a dog- happy, thinking of our trip to NYC
Tuesday night my left knee swells ow! I can't sleep its excruciating I cant walk. This is annoying
NYC with a baloon knee- not.
10 mg of oxycodone, the big guns, and I can finally sleep The Dr is concerned. Swelling could mean deep limb clotting, typical in Pan Can. " "Clotting"? Isnt that what Capt Mike ( local fencing coach) died from?", asked my worried William. He is so smart darn it.
Wednesday a.m. Martha is flashing back to painful sleepless nights in the worst of my symptoms The kids feel the tension
Weds Stat appointment with oncologist and tests at the hospital.
Across the street again Stat. Arterial dopler sonogram looking for clots in leg and check for fluid on knee.
Whew! No clot.
The knee and swelling improve hourly. Good nights sleep with Tylenol.
Get up ready to pack for NYC.
Not so fast cowboy! Thursday am Doctor calls. They did not check for fluid as asked. An error. should have been done at the sonogram.
If there is fluid it needs to be tapped for lab tests- possibility of septic joint. Very serious long term complications. I can't let it go.
Apologies.
The team is waiting for me at the hospital for the test.
Jump in the car.Swooning for another trip to Ventura with my flip flop chemo stomach.
Another warm, wet sonogram.
There was no fluid. There was no tap to be done.
This is just me falling apart. This is just annoying.

Love to all
I'm off to Brooklyn

John